Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)

Ana Martins; Lindsey Bennister; Lorna A. Fern; Craig Gerrand; Maria Onasanya; Lesley Storey; Mary Wells; Jeremy S. Whelan; Rachael Windsor; Julie Woodford; Rachel M. Taylor

doi:10.1007/s11136-020-02481-x

Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)

Ana Martins, Lindsey Bennister, Lorna A. Fern, Craig Gerrand, Maria Onasanya, Lesley Storey, Mary Wells, Jeremy S. Whelan, Rachael Windsor, Julie Woodford, Rachel M. Taylor^*

^*Corresponding author for this work

Research output: Contribution to journal › Article › peer-review

28 Citations (SciVal)

Original language	English
Pages (from-to)	2287-2297
Number of pages	11
Journal	Quality of Life Research
Volume	29
Issue number	8
DOIs	https://doi.org/10.1007/s11136-020-02481-x
Publication status	Published (VoR) - 1 Aug 2020

Funding

Rachel Taylor is a National Institute for Health Research (NIHR) Senior Nurse Research Leader. The views expressed in this article are those of the author and not necessarily those of the NIHR, or the Department of Health and Social Care. The authors would like to thank the following sarcoma teams for recruiting to the study: Dr Fiona Cowie (Beatson Oncology Centre, Glasgow), Dr Helen Hatcher (Cambridge University Hospitals), Dr Dan Stark (Leeds Teaching Hospitals NHS Foundation Trust), Dr Sherron Furtado (Newcastle Upon Tyne Hospitals), Suriya Kirkpatrick (North Bristol NHS Trust), Mr Robert Ashford (Nottingham University Hospitals NHS Foundation Trust and University Hospitals Leicester NHS Trust), Clare McKenzie (Oxford University Hospitals NHS Foundation Trust), Jayne Edwards and Mr Paul Cool (Robert Jones and Agnes Hunt Orthopaedic Hospital), Julie Woodford (Royal National Orthopaedic Hospital), Mr Jonathan Gregory (Royal Orthopaedic Hospital), Dr Robin Young (Sheffield Teaching Hospitals NHS Trust), Dr Mariam Jafri (University Hospitals Birmingham NHS Foundation Trust), Dr Paula Wilson (University Hospitals Bristol NHS Trust), Rebecca Burt (University Hospitals Coventry and Warwickshire NHS Trust), Dr Nicola Keay (University Hospitals Southampton NHS Foundation Trust), Sarah Massey (Royal Liverpool and Broadgreen University Hospitals), Mr Amit Kumar (Central Manchester University Hospital NHS Trust), Prof Jeremy Whelan (University College London Hospitals NHS Foundation Trust). This paper presents independent research funded by Sarcoma UK. The views expressed are those of the author(s) and not necessarily those of Sarcoma UK. Acknowledgements

Keywords

Cancer
Experience
Outcome
Sarcoma

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10.1007/s11136-020-02481-x

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title = "Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)",

keywords = "Cancer, Experience, Outcome, Sarcoma",

author = "Ana Martins and Lindsey Bennister and Fern, \{Lorna A.\} and Craig Gerrand and Maria Onasanya and Lesley Storey and Mary Wells and Whelan, \{Jeremy S.\} and Rachael Windsor and Julie Woodford and Taylor, \{Rachel M.\}",

note = "Funding Information: Rachel Taylor is a National Institute for Health Research (NIHR) Senior Nurse Research Leader. The views expressed in this article are those of the author and not necessarily those of the NIHR, or the Department of Health and Social Care. The authors would like to thank the following sarcoma teams for recruiting to the study: Dr Fiona Cowie (Beatson Oncology Centre, Glasgow), Dr Helen Hatcher (Cambridge University Hospitals), Dr Dan Stark (Leeds Teaching Hospitals NHS Foundation Trust), Dr Sherron Furtado (Newcastle Upon Tyne Hospitals), Suriya Kirkpatrick (North Bristol NHS Trust), Mr Robert Ashford (Nottingham University Hospitals NHS Foundation Trust and University Hospitals Leicester NHS Trust), Clare McKenzie (Oxford University Hospitals NHS Foundation Trust), Jayne Edwards and Mr Paul Cool (Robert Jones and Agnes Hunt Orthopaedic Hospital), Julie Woodford (Royal National Orthopaedic Hospital), Mr Jonathan Gregory (Royal Orthopaedic Hospital), Dr Robin Young (Sheffield Teaching Hospitals NHS Trust), Dr Mariam Jafri (University Hospitals Birmingham NHS Foundation Trust), Dr Paula Wilson (University Hospitals Bristol NHS Trust), Rebecca Burt (University Hospitals Coventry and Warwickshire NHS Trust), Dr Nicola Keay (University Hospitals Southampton NHS Foundation Trust), Sarah Massey (Royal Liverpool and Broadgreen University Hospitals), Mr Amit Kumar (Central Manchester University Hospital NHS Trust), Prof Jeremy Whelan (University College London Hospitals NHS Foundation Trust). Funding Information: This paper presents independent research funded by Sarcoma UK. The views expressed are those of the author(s) and not necessarily those of Sarcoma UK. Acknowledgements Publisher Copyright: {\textcopyright} 2020, Springer Nature Switzerland AG.",

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doi = "10.1007/s11136-020-02481-x",

language = "English",

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AU - Martins, Ana

AU - Bennister, Lindsey

AU - Fern, Lorna A.

AU - Gerrand, Craig

AU - Onasanya, Maria

AU - Storey, Lesley

AU - Wells, Mary

AU - Whelan, Jeremy S.

AU - Windsor, Rachael

AU - Woodford, Julie

AU - Taylor, Rachel M.

N1 - Funding Information: Rachel Taylor is a National Institute for Health Research (NIHR) Senior Nurse Research Leader. The views expressed in this article are those of the author and not necessarily those of the NIHR, or the Department of Health and Social Care. The authors would like to thank the following sarcoma teams for recruiting to the study: Dr Fiona Cowie (Beatson Oncology Centre, Glasgow), Dr Helen Hatcher (Cambridge University Hospitals), Dr Dan Stark (Leeds Teaching Hospitals NHS Foundation Trust), Dr Sherron Furtado (Newcastle Upon Tyne Hospitals), Suriya Kirkpatrick (North Bristol NHS Trust), Mr Robert Ashford (Nottingham University Hospitals NHS Foundation Trust and University Hospitals Leicester NHS Trust), Clare McKenzie (Oxford University Hospitals NHS Foundation Trust), Jayne Edwards and Mr Paul Cool (Robert Jones and Agnes Hunt Orthopaedic Hospital), Julie Woodford (Royal National Orthopaedic Hospital), Mr Jonathan Gregory (Royal Orthopaedic Hospital), Dr Robin Young (Sheffield Teaching Hospitals NHS Trust), Dr Mariam Jafri (University Hospitals Birmingham NHS Foundation Trust), Dr Paula Wilson (University Hospitals Bristol NHS Trust), Rebecca Burt (University Hospitals Coventry and Warwickshire NHS Trust), Dr Nicola Keay (University Hospitals Southampton NHS Foundation Trust), Sarah Massey (Royal Liverpool and Broadgreen University Hospitals), Mr Amit Kumar (Central Manchester University Hospital NHS Trust), Prof Jeremy Whelan (University College London Hospitals NHS Foundation Trust). Funding Information: This paper presents independent research funded by Sarcoma UK. The views expressed are those of the author(s) and not necessarily those of Sarcoma UK. Acknowledgements Publisher Copyright: © 2020, Springer Nature Switzerland AG.

PY - 2020/8/1

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KW - Cancer

KW - Experience

KW - Outcome

KW - Sarcoma

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Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM)

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Keywords

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