Parents’ Journeys of Mastery and Knowledge Construction After Their Infant’s First Stage of Surgery for Complex Congenital Heart Disease

Kerry L. Gaskin*, David Barron, Jo Wray

*Corresponding author for this work

    Research output: Contribution to journalArticlepeer-review

    Original languageEnglish
    Pages (from-to)68-81
    Number of pages14
    JournalComprehensive Child and Adolescent Nursing
    Volume47
    Issue number1
    DOIs
    Publication statusPublished (VoR) - 2024

    Funding

    The work was supported by the Heart Research UK [RG2620/12/14]. Suzie Hutchinson, CEO, and Isabelle Baumber, Parent Representative, Little Hearts Matter; Amanda Daniels, Advanced Nurse Practitioner, Birmingham Children’s Hospital, and David Barron, Chief Clinical Investigator, Consultant Cardiac Surgeon, Birmingham Children’s Hospital; Dr Jo Wray, Institute of Child Health, London contributed as members of the External Advisory Group and Research Team. Mel Rooney, Needa Mohammed and Lucy Cooper, Research Nurses, Wellcome Trust Clinical Research Facility, Birmingham Children’s Hospital, recruited families into the study and gathered baseline data. Coventry University was the sponsor for the study (2012-2016). Professor Gill Furze and Dr Tim Kilner, Coventry University PhD Supervisory Team 2011 until 2013, contributed to the design of the feasibility study and preparation for ethics approval. Dr Charlotte Hilton became Director of Studies in 2013-2016, Dr Martin Bollard and Dr Penny Upton joined the supervisory team in 2015-2016. The team acknowledge the support of Heart Research UK [grant number RG2620/12/14] and the NIHR through the Comprehensive Clinical Research Network as the Feasibility Study has been adopted to the NIHR Portfolio. The team acknowledge the support of Heart Research UK [grant number RG2620/12/14] and the NIHR through the Comprehensive Clinical Research Network as the Feasibility Study has been adopted to the NIHR Portfolio.

    FundersFunder number
    Birmingham Children’s Hospital, and David Barron
    Institute of Child Health, London
    NIHR Portfolio
    Wellcome Trust
    National Institute for Health and Care Research
    Heart Research UKRG2620/12/14
    Coventry University

      Keywords

      • confidence
      • congenital
      • discharge
      • Heart defects
      • infants
      • knowledge
      • parents

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